In Honour of Ondine Sherwood

Ondine Sherwood, Long Covid SOS Co-Founder & CEO

Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.

We send all our love to her family - Steve, Benji, Sam and Alexander. 

Ondine was an amazing friend as well as the driving force behind Long Covid SOS. She leaves a huge legacy of achievements. She advocated for people with Long Covid from the earliest opportunity in 2020 through to the present day, achieving what many believed was impossible over and over again. From the first meetings with the WHO, UK government and NHS, Ondine played a foundational part in the international recognition of Long Covid. 

Her drive to keep advocating for people with Long Covid led to the founding of Long Covid SOS, becoming a registered charity in 2021. Ondine also helped set up and advise major trials in the UK including Stimulate-ICP & WILCO, and offered advice to many more scientists, medical experts and trials. She helped advise NHS England on Long Covid, and also gave testimony to the UK Covid Inquiry.

Ondine advocated at every opportunity, on TV & radio, in newspapers & on social media, and by writing letters and leading our charity’s campaigns. She was wonderfully relentless in her dedication to raising awareness of Long Covid and fighting for our voices to be heard, and was well known across the international Long Covid community. 

Ondine was the driving force behind and the heartbeat of our tight-knit Long Covid SOS team, and a dear friend to us all. We are devastated by her loss. We are determined to keep building on her legacy. We will miss her every day.