Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further research. Long-term symptoms have a devastating affect on lives and livelihoods, and Long Covid has flipped the traditional narrative when it comes to research, with patients themselves leading the charge. In this episode of Covid in the News, hosts Monique and Tom spoke to Ondine Sherwood, co-founder of patient advocacy and support group Long Covid SOS. They talk about the patient agenda, how community-driven research has changed since the start of the pandemic, Long Covid and policy, and the key questions to be answered in the coming months
How are patient advocacy groups helping Long Covid recognition and research?
Updated: Apr 18
Hello Ondine. Thank you very much for sharing your experiences. At the end of your video you also touched on an important topic, the understanding, or rather lack of, that comes from employers. I believe the campaign should target employers, HR and OH departments. A coordinated and coherent guidance for employers is a must. People who suffer with long Covid/ post Covid 19 syndrome, can relapse as a result of work related stress, at least that was my experience.