NEWS

Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.

This letter calls for urgent action to support people with Long Covid, pause clinic closures, and support the Long Covid SOS Bill of Rights

We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.

Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today

Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f

Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic

Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn

As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co

Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session

The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha

In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister

More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled

As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people

On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform. It included several videos depicting

The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co

We are very excited to announce that our new Resources page is now live on our website. Our dedicated team members have been working very h

After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.

On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups

The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.

Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open

The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou

Module 4 of the Covid-19 Inquiry opens this week and will examine the roll out of vaccines, therapeutics and anti-viral treatment across the

Today a letter has been sent to Secretary State for Health and Social Care Steve Barclay from the charity Long Covid SOS, urging the governm

This morning, the BBC published an article using Long Covid as a metaphor for a downturn in the tourist industry due to the pandemic:

Wednesday 15th March 2023 is the first annual International Long Covid Awareness day. Advocates from all over the world are uniting to push

Today Long Covid SOS along with three other Long Covid groups - Long Covid Kids, Long Covid Physio and Long Covid Support - were represente

Today, Long Covid SOS signed a letter along with 20 other organisations calling for the government to pass legislation to ensure people usin

This paper in the BMJ was picked up by almost all news outlets leading to headlines which give a very inaccurate impression about the course

To celebrate our first Christmas as a charity our friend and advocate Kim Horstmanshof has very kindly donated her beautiful photos to us

National Covid charity Long Covid SOS is pleased to announce today the appointment of Dr Linda Baines as their new Chair of Trustees.

This debate was proposed by Baroness Thornton (Labour), Non-executive Director, Whittington Health Hospital Trust

Long Covid SOS announced today they have along with 2 others been granted core participant status in Module 2 of the UK Covid-19 Inquiry,

On behalf of the members of our charity we would like to congratulate Mr Barclay in his challenging role as Secretary of State for Health a

Long Covid SOS today congratulated new Health and Social Care Secretary Thérèse Coffey on her appointment and called for her to do more to

TLC Newsletter July 2022 New publication - Long Covid and risk factors We have a few updates for you on the TLC study... We recently analyse

Matt Hancock applauds the UK’s decision to end all legal Covid-19 restrictions and concludes that, despite rising infections due to yet anot

Long Covid SOS are partners on this study and we wish to disseminate this webinar series for those who wish to find out more about it.

On 13th May 2022 a coalition including groups representing those who have been impacted by the pandemic launched the Covid-19 Safety Pledge

The NIHR has launched new content to outline the wide range of research studies on understanding Long Covid

Long Covid was debated on 31/03/2022 in the House of Commons - watch it here

Today’s announcement from Boris Johnson is yet another blow to those who are living with the long term effects of Covid-19.

Statement from LongCovidSOS about further easing of restrictions announced by Prime Minister Boris Johnson on 9th February 2022

"Clearing the backlog caused by the pandemic" LongCovidSOS were asked to submit written evidence to this inquiry (see this post) and also...

We were asked to submit evidence to the committee's inquiry "Clearing the backlog caused by the pandemic" You can read our submission on th

We ask you to urgently reconsider the timing of the removal of all measures to mitigate the spread of Covid-19. Any steps towards

Since the rollout of the vaccine programme, there has been concern among those with Long Covid that vaccination could exacerbate their sympt

This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021...

You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM

The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider

‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.