Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
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Recognition - Research - Rehabilitation
NEWS
Long Covid SOS Team
Sep 83 min read
The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
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Long Covid SOS Team
May 242 min read
At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
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Long Covid SOS Team
Apr 262 min read
Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
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Long Covid SOS Team
Apr 92 min read
The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
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Long Covid SOS Team
Mar 273 min read
Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
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Long Covid SOS Team
Mar 152 min read
Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
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Ondine Sherwood
Feb 21 min read
Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
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Ondine Sherwood
Dec 6, 20234 min read
Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
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Long Covid SOS Team
Nov 20, 20232 min read
Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
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Long Covid SOS Team
Nov 2, 20232 min read
Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
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Long Covid SOS Team
Oct 16, 20231 min read
Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
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Long Covid SOS Team
Oct 10, 20232 min read
CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
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Karen Matthews
Oct 9, 20231 min read
Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
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Long Covid SOS Team
Oct 3, 20234 min read
Long Covid Groups Express Dismay as it is revealed Boris Johnson believed Long Covid to be BOLLOCKS
The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou
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Long Covid SOS Team
Sep 14, 20236 min read
Long Covid Charities Express Their Anger at Being Excluded from Module 4 of the UK Covid Inquiry
Module 4 of the Covid-19 Inquiry opens this week and will examine the roll out of vaccines, therapeutics and anti-viral treatment across the
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Ondine Sherwood
Aug 31, 20233 min read
The UK Government Needs to Expand Covid-19 Vaccination This Winter: letter to Steve Barclay MP
Today a letter has been sent to Secretary State for Health and Social Care Steve Barclay from the charity Long Covid SOS, urging the governm
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Long Covid SOS Team
Mar 17, 20232 min read
Long Covid is a debilitating illness - not an opportunity to grab your readers' attention, BBC
This morning, the BBC published an article using Long Covid as a metaphor for a downturn in the tourist industry due to the pandemic:
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Long Covid SOS Team
Mar 15, 20232 min read
Long Covid SOS Marks Long Covid Awareness Day with the Release of a New Film: Things Need To Change
Wednesday 15th March 2023 is the first annual International Long Covid Awareness day. Advocates from all over the world are uniting to push
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Long Covid SOS Team
Feb 28, 20233 min read
Long Covid SOS Attend Module 3 Preliminary Hearing, UK Covid-19 Inquiry
Today Long Covid SOS along with three other Long Covid groups - Long Covid Kids, Long Covid Physio and Long Covid Support - were represente
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Long Covid SOS Team
Jan 30, 20233 min read
Long Covid SOS writes to Health Secretary Steve Barclay: The UK Is Running Out Of Clean Air
Today, Long Covid SOS signed a letter along with 20 other organisations calling for the government to pass legislation to ensure people usin
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Long Covid SOS Team
Jan 20, 20234 min read
Our response to BMJ paper suggesting most recover from Long Covid within a year
This paper in the BMJ was picked up by almost all news outlets leading to headlines which give a very inaccurate impression about the course
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Long Covid SOS Team
Nov 26, 20223 min read
The Long Covid SOS 2023 fundraising calendar has arrived!
To celebrate our first Christmas as a charity our
friend and advocate Kim Horstmanshof has very kindly donated her beautiful photos to us
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Long Covid SOS Team
Nov 21, 20222 min read
Long Covid SOS welcomes Dr Linda Baines as new Chair of Trustees
National Covid charity Long Covid SOS is pleased to announce today the appointment of Dr Linda Baines as their new Chair of Trustees.
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Long Covid SOS Team
Nov 17, 20221 min read
House of Lords debate 17/11/22 Long Covid: What are the short- and long-term challenges?
This debate was proposed by Baroness Thornton (Labour), Non-executive Director, Whittington Health Hospital Trust
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Long Covid SOS Team
Oct 31, 20224 min read
UK COVID-19 Inquiry: Long Covid SOS granted Core Participant Status along with 2 other Charities
Long Covid SOS announced today they have along with 2 others been granted core participant status in Module 2 of the UK Covid-19 Inquiry,
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Long Covid SOS Team
Oct 27, 20222 min read
Our statement on the appointment of Secretary of State for Health and Social Care Steve Barclay MP
On behalf of the members of our charity we would like to congratulate Mr Barclay in his challenging role as Secretary of State for Health a
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Long Covid SOS Team
Sep 21, 20222 min read
Long Covid SOS writes to new Health Secretary Thérèse Coffey
Long Covid SOS today congratulated new Health and Social Care Secretary Thérèse Coffey on her appointment and called for her to do more to
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Karen Matthews
Aug 30, 20221 min read
Update to Therapies in Long Covid Study
TLC Newsletter July 2022
New publication - Long Covid and risk factors
We have a few updates for you on the TLC study...
We recently analyse
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Ondine Sherwood
Jul 6, 20222 min read
Long Covid SOS responds to Matt Hancock: in the face of soaring cases there is "no cause for alarm"
Matt Hancock applauds the UK’s decision to end all legal Covid-19 restrictions and concludes that, despite rising infections due to yet anot
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Karen Matthews
Jun 2, 20221 min read
Therapies in Long Covid Webinar Series
Long Covid SOS are partners on this study and we wish to disseminate this webinar series for those who wish to find out more about it.
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Long Covid SOS Team
May 19, 20223 min read
Long Covid SOS join the launch of the Covid Safety Pledge
On 13th May 2022 a coalition including groups representing those who have been impacted by the pandemic launched the Covid-19 Safety Pledge
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Karen Matthews
May 16, 20221 min read
NIHR Long Covid research update
The NIHR has launched new content to outline the wide range of research studies on understanding Long Covid
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Long Covid SOS Team
Mar 31, 20221 min read
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
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Long Covid SOS Team
Feb 21, 20222 min read
Statement in response to the Prime Minister’s announcement on 21/02/2022 removing all Covid measures
Today’s announcement from Boris Johnson is yet another blow to those who are living with the long term effects of Covid-19.
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Long Covid SOS Team
Feb 10, 20222 min read
Statement from LongCovidSOS about further easing of restrictions announced by Boris Johnson 09/02/22
Statement from LongCovidSOS about further easing of restrictions announced by Prime Minister Boris Johnson on 9th February 2022
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Ondine Sherwood
Jan 11, 20224 min read
"We cannot afford to let them down" The Health & Social Care Select Committee publishes their report
"Clearing the backlog caused by the pandemic" LongCovidSOS were asked to submit written evidence to this inquiry (see this post) and also...
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Long Covid SOS Team
Sep 18, 202110 min read
LongCovidSOS submit evidence to the Health and Social Care Select Committee inquiry into the Backlog
We were asked to submit evidence to the committee's inquiry "Clearing the backlog caused by the pandemic" You can read our submission on th
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Long Covid SOS Team
Jul 15, 20213 min read
LongCovidSOS writes to Sajid Javid: "We must take long covid into account when easing restrictions"
We ask you to urgently reconsider the timing of the removal of all measures to mitigate the spread of Covid-19. Any steps towards
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Ondine Sherwood
May 18, 20213 min read
LongCovidSOS publish results of their survey into the impact of vaccination on Long Covid Symptoms
Since the rollout of the vaccine programme, there has been concern among those with Long Covid that vaccination could exacerbate their sympt
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Ondine Sherwood
Apr 22, 20213 min read
Research is needed now to help people with Long Covid
This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021...
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Ondine Sherwood
Jan 14, 20211 min read
Long Covid was debated on 14/01/2021 in the House of Commons - watch it here
You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM
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Ondine Sherwood
Jan 12, 20214 min read
The risk of Long Covid must be a primary consideration in policy decisions
The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider
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Ondine Sherwood
Nov 16, 20204 min read
Why 'Post Covid-19 Syndrome' is the wrong choice of name
‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.
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Ondine Sherwood
Oct 14, 20204 min read
LongCovidSOS Respond to the NHS 5 Part Package of measures to help Long Covid patients
You can read about the measures here This feedback has been shared with NHS England Thank you Professor Powis for responding to the Open...
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Long Covid SOS Team
Sep 19, 20202 min read
Long Covid SOS Starts Conversation with NHS England about Long Covid Services
Long Covid SOS met with NHS England to discuss treatment and services for those with Long Covid.
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Ondine Sherwood
Sep 10, 20201 min read
Matt Hancock acknowledges Long Covid at the Health and Social Care Committee
Long covid has at last been acknowledged by the UK Government. Two months after our Open Letter was sent to Boris Johnson, Matt Hancock...
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Aug 7, 20203 min read
LongCovidSOS respond to the new NHS 'Your Covid Recovery' service
We welcome the Your Covid Recovery portal but believe at present it cannot fully address the needs of the majority of Long Covid sufferers.
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haylock53
Aug 6, 20202 min read
Where does the UK government stand on Long Covid?
When we first started our campaign, our primary goal, was to achieve recognition by the U.K. government. Though we’ve yet to achieve that...
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haylock53
Aug 5, 20201 min read
Long Covid sufferers present evidence to the All Party Parliamentary Group on Coronavirus
Sufferers from the Long Covid Support Group were called on today to present evidence to the U.K. All Party Parliamentary Group, formed to...
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