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The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
Long Covid SOS
Apr 9, 20242 min read
140


Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read
234

Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
Long Covid SOS
Mar 27, 20243 min read
669


The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
Ondine Sherwood
Mar 21, 20242 min read
214


Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
291


Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
148


Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
Ondine Sherwood
Feb 2, 20241 min read
183


Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
Long Covid SOS
Feb 2, 20243 min read
6,979

Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
Ondine Sherwood
Dec 6, 20234 min read
428


Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
Long Covid SOS
Nov 20, 20232 min read
1,072


Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
Long Covid SOS
Nov 16, 20232 min read
104


Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
Long Covid SOS
Nov 2, 20232 min read
174

Where would you be if you could?
I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling
around the UK next year. Created by Alison
Long Covid SOS
Nov 1, 20232 min read
126

Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
Long Covid SOS
Oct 16, 20231 min read
242


CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
Long Covid SOS
Oct 10, 20232 min read
134

Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
Karen Matthews
Oct 9, 20231 min read
59


Long Covid Groups Express Dismay as it is revealed Boris Johnson believed Long Covid to be BOLLOCKS
The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou
Long Covid SOS
Oct 3, 20234 min read
573


Long Covid Charities Express Their Anger at Being Excluded from Module 4 of the UK Covid Inquiry
Module 4 of the Covid-19 Inquiry opens this week and will examine the roll out of vaccines, therapeutics and anti-viral treatment across the
Long Covid SOS
Sep 14, 20236 min read
259


The UK Government Needs to Expand Covid-19 Vaccination This Winter: letter to Steve Barclay MP
Today a letter has been sent to Secretary State for Health and Social Care Steve Barclay from the charity Long Covid SOS, urging the governm
Ondine Sherwood
Aug 31, 20233 min read
377


The Cost of Friendship Can be Worth its Weight in Gold.
Some say that you really find out who your friends are when you become chronically ill. It’s true to some extent but friendship is still a
Long Covid SOS
Jun 8, 20232 min read
197
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