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Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read
124 views


Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
Long Covid SOS
Oct 23, 20243 min read
185 views


The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
Long Covid SOS
Oct 10, 20242 min read
130 views


Black History Month: We Must Do More Than Acknowledge, We Must Act!
As we enter Black History Month, we honour the rich histories, cultures, and contributions of Black communities and other people of colour.
Long Covid SOS
Sep 30, 20245 min read
66 views


Pain Awareness Month: Understanding Chronic Pain in the Context of Long Covid
Chronic pain can change any aspect of a person's life, from how they move, think and sleep to how they spend time with loved ones...
Long Covid SOS
Sep 16, 20243 min read
121 views


People with Long Covid Need Vaccine Boosters: Protecting the Vulnerable and Addressing Health Inequalities
The Covid-19 pandemic has left an enduring mark on countless lives across the globe. In England and Scotland alone, over 2 million people ha
Long Covid SOS
May 28, 20243 min read
222 views


We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
Long Covid SOS
May 13, 20244 min read
139 views


The Right to Support:
In the third instalment of our series of Blog Posts  unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
Long Covid SOS
Apr 16, 20243 min read
162 views


Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read
234 views


Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
291 views


Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
148 views


Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
Long Covid SOS
Feb 2, 20243 min read
6,979 views


Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
Long Covid SOS
Nov 16, 20232 min read
104 views

Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
Karen Matthews
Oct 9, 20231 min read
59 views


The Cost of Friendship Can be Worth its Weight in Gold.
Some say that you really find out who your friends are when you become chronically ill. It’s true to some extent but friendship is still a
Long Covid SOS
Jun 8, 20232 min read
197 views


We need Inclusive Advocacy for LGBTQ+ People Living with Long Covid and other Chronic Conditions.
Throughout Pride Month we are highlighting the inclusive advocacy needed for LGBTQ+ people living with Long COVID & other chronic condions
Long Covid SOS
May 31, 20233 min read
171 views


Nurturing Mental Health: A Vital Journey for Those Living with Chronic Conditions
Throughout Mental Health Awareness week we will being focusing on Long Covid Wellbeing.
Living with a chronic condition such as Long Covid
Long Covid SOS
May 16, 20233 min read
220 views


All change! Riding the Long Covid Express
When my daughter, Rosie (17), had a mild dose of Covid-19 in September last year, I never dreamed how fundamentally it would change her life
Long Covid SOS
Aug 29, 20224 min read
773 views


‘I remember’ - the Scottish Covid Memorial
Alec Finlay has been appointed to work on Scotland’s Covid memorial in the grounds of Glasgow’s Pollok Country Park. In this blog he talks
Long Covid SOS
Jun 29, 20213 min read
276 views


How are patient advocacy groups helping Long Covid recognition and research?
Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further...
Ondine Sherwood
Apr 15, 20211 min read
250 views
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