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Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic

Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn

As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co

Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...

Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session

I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity

The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha

In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister

More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled

The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the

As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people

Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine

On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform. It included several videos depicting

Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.

The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co

From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...

I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling around the UK next year. Created by Alison

On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups

The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.

Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open