Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
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Long Covid SOS Team
Sep 83 min read
The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
314 views
Long Covid SOS Team
Jun 33 min read
The Right to Funded Research:
Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...
98 views
Long Covid SOS Team
May 242 min read
At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
447 views
Long Covid SOS Team
May 33 min read
Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
134 views
Long Covid SOS Team
Apr 262 min read
Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
272 views
Long Covid SOS Team
Apr 92 min read
The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
137 views
Long Covid SOS Team
Mar 273 min read
Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
656 views
Ondine Sherwood
Mar 212 min read
The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
212 views
Long Covid SOS Team
Mar 152 min read
Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
249 views
Long Covid SOS Team
Mar 143 min read
Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
143 views
Ondine Sherwood
Feb 21 min read
Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
179 views
Long Covid SOS Team
Feb 23 min read
Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
6,481 views
Ondine Sherwood
Dec 6, 20234 min read
Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
392 views
Long Covid SOS Team
Nov 16, 20232 min read
Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
103 views
Long Covid SOS Team
Nov 1, 20232 min read
Where would you be if you could?
I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling
around the UK next year. Created by Alison
123 views
Long Covid SOS Team
Oct 16, 20231 min read
Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
240 views
Long Covid SOS Team
Oct 10, 20232 min read
CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
134 views
Karen Matthews
Oct 9, 20231 min read
Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
58 views
Long Covid SOS Team
Oct 3, 20234 min read
Long Covid Groups Express Dismay as it is revealed Boris Johnson believed Long Covid to be BOLLOCKS
The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou
571 views
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