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Recognition - Research - Rehabilitation
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In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 122 min read
6,723 views

Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 262 min read
124 views

New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 152 min read
158 views


New resource available for GPs to help the millions with Long Covid get the healthcare they so badly need
Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f
Long Covid SOS
Dec 10, 20244 min read
1,795 views


Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read
124 views


We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
Long Covid SOS
May 13, 20244 min read
139 views

The first Long Covid SOS Newsletter has arrived!
Welcome to our new Long Covid SOS Newsletter! This is a space for the Long Covid SOS team to share with you what has been going within the o
Long Covid SOS
May 10, 20241 min read
354 views


Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
Long Covid SOS
May 3, 20243 min read
136 views


The Right to Support:
In the third instalment of our series of Blog Posts  unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
Long Covid SOS
Apr 16, 20243 min read
162 views


Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read
234 views


Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
293 views


Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
149 views


Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
Long Covid SOS
Feb 2, 20243 min read
7,000 views

Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
Ondine Sherwood
Dec 6, 20234 min read
428 views


Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
Long Covid SOS
Nov 20, 20232 min read
1,072 views


Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
Long Covid SOS
Nov 2, 20232 min read
174 views

Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
Long Covid SOS
Oct 16, 20231 min read
242 views


CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
Long Covid SOS
Oct 10, 20232 min read
134 views


Long Covid Groups Express Dismay as it is revealed Boris Johnson believed Long Covid to be BOLLOCKS
The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou
Long Covid SOS
Oct 3, 20234 min read
573 views


The Cost of Friendship Can be Worth its Weight in Gold.
Some say that you really find out who your friends are when you become chronically ill. It’s true to some extent but friendship is still a
Long Covid SOS
Jun 8, 20232 min read
197 views
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