top of page

In Crisis? Click here

Check out our new Gallery

Sign up to our Newsletter
Recognition - Research - Rehabilitation
ALL POSTS
Search


In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 122 min read
6,670 views


Urgent action needed on Long Covid and Clinic Closures: letter to Ashley Dalton MP
This letter calls for urgent action to support people with Long Covid, pause clinic closures, and support the Long Covid SOS Bill of Rights
Long Covid SOS
Feb 282 min read
237 views

Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 262 min read
124 views

New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 152 min read
157 views


New resource available for GPs to help the millions with Long Covid get the healthcare they so badly need
Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f
Long Covid SOS
Dec 10, 20244 min read
1,755 views


Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read
124 views


Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
Long Covid SOS
Oct 28, 20246 min read
406 views

The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
Long Covid SOS
Sep 8, 20243 min read
339 views


At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
Long Covid SOS
May 24, 20242 min read
457 views

Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
Long Covid SOS
Apr 26, 20242 min read
278 views


The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
Long Covid SOS
Apr 9, 20242 min read
140 views

Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
Long Covid SOS
Mar 27, 20243 min read
669 views


Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
291 views


Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
Ondine Sherwood
Feb 2, 20241 min read
183 views

Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
Ondine Sherwood
Dec 6, 20234 min read
428 views


Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
Long Covid SOS
Nov 20, 20232 min read
1,072 views


Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
Long Covid SOS
Nov 2, 20232 min read
174 views

Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
Long Covid SOS
Oct 16, 20231 min read
242 views


CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
Long Covid SOS
Oct 10, 20232 min read
134 views

Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
Karen Matthews
Oct 9, 20231 min read
59 views
bottom of page